Hello!

Just wondering if anyone else has a daughter with Turners Syndrome?


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  • There is a Facebook support group https://www.facebook.com/TurnersSyndromeSupportGroupAustralia/posts/473168569479892
    And the is also a Turner Syndrome Association who can support.


  • I used to like a Facebook page about a little girl with Turners Syndrome, as well as a multitude of other health conditions. It’s been deleted though


  • No, I would also suggest seeing your G.P who could refer you to a specialist.


  • There was a page on Facebook called Willows Organic Oasis, it was about little Willow who has Turners Syndrome (as well as a couple of other difficulties) and the things her mum was doing to help her progress. Not sure if it’s still on there or not, hope it helps


  • No I’m so sorry. I think maybe the GP or hospital , community services centre could help!


  • Just getting her eyes tested. Dont know if its part of turners but she cant see kilometre signs along the road


  • My daughter has a friend who has this. She is in her 30s, with not much of a neck, her joints in her arms and legs make it difficult for her. Her elbows are twisted around so her arms swing out more. Tried to teach her lawn bowls but her arms would not let her. Then her knees are more like knock knees. She has lost two family members to heart disease and she has a weight problem. When driving she cant turn her neck to look turning. Having many accidents. Cannot do maths and finances. She does spell ok enough to get her through.


  • No. Perhaps your GP or hospital social worker could help.


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