Do any mums have kids with anaphylaxis? How do they cope, and do they have any tips they could share.

Posted by anon, 29/7/13

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  • I worked with a lady who had to carry an epi pen due to being allergic to bull ant bites. It was a bit alarming as she told me it was out of date and she didn’t know where it was. A bite could kill her, why is she risking her life?!



  • educate everyone around you, its so importnat



  • Don’t stress. Be cautious but let them be part of the decision too once they are old enough. My son was diagnosed at two, and is now 23yo. Back then, I had an ampoule and a syringe my doctor gave me illegally as he was so severe, and I could save his life!! Now epipens are so easy to use. Just remember that adrenalin makes them absolutely hyper and can make them volatile for a bit. Nick never had any aids at school, or special treatment. I think some parents are a little too precious with their kids. And expect everyone else to make allowances for their kid. Nick new not to take food from others, and still is so vigilant checking labels and eating out he asks the chef or waiter to be careful as his reaction is so severe. Live life and take it in your stride. All the best K



  • Always have an epipen.. And be very cautious of packaged foods. If necessary,cook everything yourself.



  • educate them very early on what they can and cant come into contact with, make sure they know how to use their epi pen



  • It is a very serous and life threatens condition. You should seek medical advice and always carry and epi pen



  • with anaphylaxis you must go to the emergency.



  • I hope you found the answer with so many valuable tips Good luck



  • I have a daughter who is anaphylaxis and it’s scarey. I struggle with the school as I do not think they are capable enough. I prepare my own food as I know what is going into it! I am lucky my daughter is very aware and even questions me sometimes!



  • If its a food allergy and they need separately prepared food, for parties make sure you liaise with the parents holding the party and prepare a cake/cupcake/etc that looks exactly the same as the other children’s.



  • yes nuts would be terrifying.



  • That’s really scary A-Edwards! I would be making a lot of noise and drilling it into them just how serious it is!



  • Lots of great suggestions here, I don’t have anything to add really, but make sure she/he has an allergy bracelet.



  • Damn hard. My daughter is anaphylaxis to nuts. The school and teachers r really incompetent and it’s driving me mad. On a number of occasions I have to notify relief teachers of this and they do not have a good handover system. I have recently made the principal very aware. Lucky I did. They can start to realize they r not doing the right thing. The hardest thing is leaving her at school knowing they r so incapable.



  • You must be very very cautious for the safety of your child and inform school if at school or relevant people. Also make sure you have the epipen a all times


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